After visiting the RA Doc last week she decided to put me on Enbrel. I was alarmed at first. I did not want another drug that would make me want to eat everything in sight and punch strangers. Prednisone makes me crazy enough, I think I may change my name to Sybil. But, after talking with my Doc, doing some research, and having a mom that knows how to make you look on the sunny side of things, I am ok. Scared, but ok. I just got off the phone with an Enbrel nurse and they seem very helpful and kind. But, the problem here is, why? What am I taking that requires a lunch box size kit, 24 hour nurse access, and phone calls from the Enbrel people every few days. As much as my parents may argue, I know I am not special, so why all the attention? This must be a pretty serious drug for so many different people to be spending so much time talking to me about it. Or, am I being a baby? So, if you have some Enbrel stories, please share.
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RA Girl, I had to chuckle when reading this post because I had the same experience last summer when I started on Enbrel. It freaked me out a little bit that I kept getting phone calls. It felt like I was in a sci-fi movie and everyone was coming together in a plot to take over my body. The cost of the medication (without insurance or Enbrel help) freaked me out, the phone calls freaked me out, the nurse coming to my house freaked me out, everything about the process freaked me out! It was so much attention focused on me. I felt the same way, "Geez, I am special, but really? This special?"
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