After visiting the RA Doc last week she decided to put me on Enbrel. I was alarmed at first. I did not want another drug that would make me want to eat everything in sight and punch strangers. Prednisone makes me crazy enough, I think I may change my name to Sybil. But, after talking with my Doc, doing some research, and having a mom that knows how to make you look on the sunny side of things, I am ok. Scared, but ok. I just got off the phone with an Enbrel nurse and they seem very helpful and kind. But, the problem here is, why? What am I taking that requires a lunch box size kit, 24 hour nurse access, and phone calls from the Enbrel people every few days. As much as my parents may argue, I know I am not special, so why all the attention? This must be a pretty serious drug for so many different people to be spending so much time talking to me about it. Or, am I being a baby? So, if you have some Enbrel stories, please share.
So, I am slowly putting together a kit of things I need most when dealing with a flare up. So far I have, a heating pad, biofreeze, heat packs, and essential oil. What do you use for a flare up? What would you put in your kit?
I am getting ready for my Arthritis Walk tomorrow then the RA Doc on Monday, I am very excited! I will be sure to have some new information come next week. Have a great weekend everyone!!!
I am very excited to see my RA Doc on Monday. I have several questions and am anxious to find out what type of immunizations she recommends that we RA girls have. As a nursing student about to go into the hospital setting I realize I must be protected better than most. So, I am going to ask as much as I can and I promise to share everything I learn with you.
I have cut back to one Prednisone a day and it has made a big difference. I have lost the urge to punch everyone in the face and I am looking less like a puffer fish.
I realize I have been slacking a bit on my page, I am now working two jobs and taking summer classes. This equals me needing a few more hours in the day or a personal assistant...............or both. I have two days off next week instead of one since I am going to the Arthritis Foundation walk. I am going to use my extra time to add some more to my page. I have alot of great information coming!
For today, check out my post under "LIFE WITH RA" about infrared saunas.
Carrie, student by day, bartender by night, patient in between.