It is a whole new world when you become sick. You look at things differently, some things are better, some worse. You hope that people understand how it feels to be sick. Sometimes they do, but more often than not, they don’t. How can the healthy know what it is to be sick? Co-workers think I am a germa-phobe for washing my hands constantly, when truly I am petrified of catching something because my body does not possess the strength to fight off infections. My boyfriend doesn’t understand that when he wakes up, the first thing he thinks of is what he has to do that day. When I wake, the first thing in my head is, how much pain will I be in when I get out of bed? Followed by my morning meds, breakfast, errands, work, afternoon meds, homework, chores, exercise, and evening meds. If I have the energy to do all of that, it is a GREAT day! But usually I don’t and it will leave me feeling guilty for not doing enough. Again, a place a manual would come in handy. If I had the time and the energy I would right a funny manual to living with RA, maybe after I finish nursing schoolJ
My goal for the month is to recognize when I am taking on too much and give myself a break! I am not wonder women!
Funny note: I am an idiot, and did not let my Enbrel shot get warm enough. I injected myself and it was so cold it felt like someone had stabbed me in the leg with an icecicle!! Half way through the injection I pulled it out and the Ebrel went spraing all over while I was screaming profantities. So, I went and bought myself an egg timer so this doesnt happen again.
Do you have any Enbrel stories? Tips? Reactions? Comments? I am on week two and anxious to hear what you think:)